Coping with mental health flares
Coping with mental health flares is something I have had to work on and get good at over the years. I have struggled with my mental health since my mid-teens and have recently found myself fighting with my thoughts, so let’s talk about it. Mental health struggles These last few weeks have been really a struggle for me, and I think sometimes it takes a little longer to realise and do something about it. I generally practice mindfulness, but I have been struggling with it, which is usually one of my first clues, but this time I missed it. The world feels overwhelming at the moment, government wanting to again…
May awareness days are overwhelming
May is a busy month as far as awareness days are concerned, and for me May awareness days are overwhelming. I have several chronic illnesses and all of the connected days to raise understanding about them have been chosen to fall this month. Lets get into it. Before we begin, lets talk about why May awareness days are overwhelming for me, I love raising awareness so I should be excited. The problem is that it is all of my illness’ awareness is the same month, so I never know where to begin. I only write four blog posts a month, so I cannot give them a dedicated post to each…
Recovering From a Trip With Chronic Illnesses
I had a wonderful time away last weekend at a Supernatural convention, but now I need to be careful. I think recovering from a trip with chronic illnesses is so hard and something I would love to chat about this week. This last weekend I was at a Supernatural convention run by Starfury Conventions, and I have been going to their events for about 20years or more at this point. I love how inclusive they are, no matter what gender, disability or anything else, everyone is welcome. I have had to cut down to maybe one event a year because of my health and money, but I always struggle to…
Taking a Trip With Chronic Illness
This weekend I am taking a Trip with Chronic Illness; it is never easy and there is always a chance my body could flare. However, me and my best friend have found ways to make it work and have fun without the struggle. So, here are my tips and tricks Trips When Disabled Going away when you have chronic illnesses can be daunting and overwhelming as there is so much to consider. I have not been on a proper holiday for years for this reason, it just takes a lot to find somewhere suitable, especially if you are going away with other people. When you do not live with someone,…
Conversations about Multiple Sclerosis – MS awareness week 2025
Conversations about Multiple Sclerosis can be awkward, difficult and emotional and are often things we avoid. It is a well-known illness, and something that is recognised by society as being legitimately disabling. Yet, asking questions, telling friends and family or letting work know can be so hard, so let’s get into it. Why conversations can be hard The first diagnosis I ever got was multiple sclerosis, I was treated as if I had it for about six years before my neurologist told me I didn’t have it. Both very difficult conversations to have but gaining and then losing that diagnosis taught me a lot about disability. When I was given…
Turning to ART with Chronic Illness
Turning to art with chronic illness is something I have heard a lot of people in my community have done to cope. I know the government likes to paint us as lazy, but the truth is many of us use art as a way to fill the void that work can leave in our lives. As yesterday was world art day, I thought we would talk about it more. My journey with ART As a child I loved art, but was terrible at it, at school I struggled a lot and to be honest any artistic endeavours were met with laughter. I came to realise that art was not for…
Improving Communication as a Caregiver
Today I want to talk about improving communication as a caregiver and why it is so important to set boundaries. I wish I had advice before becoming a carer to my mom and I am sure I’m not alone in that. So, let’s get into it. Anyone Could Become a Caregiver In 2021 the census showed that there are 5.8million unpaid carers in the UK, and 1.7million of them provide over 50hours of care a week. These are shocking figures, many of these people are parents, spouses or children of the person needed the care. These people save the country so much money as they provide care in ways that…
Becoming More Active With Chronic Illness
We all know how important it is to exercise, but becoming more active with chronic illness is not easy. It can cause flares of pain and fatigue as well as many places like gyms and studios are not equipped or accessible. So, let’s have a chat about it. Why becoming more active is important I grew up with a father who loved to exercise, he was always doing fun runs and half marathons. He enjoyed climbing mountains and plays squash almost every day, I spent much of my childhood colouring or reading while he played. So, as I grew, I knew that moving my body was important, however, my legs…
5 Smart Ways To Make Life A Little Easier For Disabled People & Those With Chronic Illness
Life can be tough for anyone, but for those with disability and/or chronic illnesses, it can be particularly difficult. There are some things we can do to make our lives a little easier, though. Just read on to find out what they are. Smart heat and lights Many people with chronic conditions and disabilities can be particularly sensitive to heat and light. This means it makes sense to be as in control of these home factors as possible. Of course, this can be a real pain if it means having to move from room to room or go downstairs to alter the thermostat. That is why it’s a good idea…
Coping with Change
Coping with change when you are disabled can be difficult and overwhelming and something I have been dealing with recently. So, lets chat about it and see if there are ways to make it easier to cope with. Change is overwhelming Change is something that I have never been good at, growing up was so hard for me as there was constant change. Now, as an adult, I get to feel in control more especially because I do not go out of my house very often. This means that I can have a set routine for my life and through that I can flow through easily. It makes me feel…
