Invisible Disabilities week 2024
It is Invisible Disabilities week 2024, and once again I feel the need to talk about how we shouldn’t judge a book by it’s cover. Too often medical professionals and the public see us on social media living our lives…
World mental health day 2024
This year the theme for world mental health day 2024, is workplace burnout, and I am sure you are wondering what I could know about that! I have been unable to work for over twenty years, but I tried many…
The frustrations of being a wheelchair user
I will be honest, the frustrations of being a wheelchair user are many and though some are individual, many are shared. So, I thought today I would spend a little time explaining about the different reasons someone might use a…
Pain Awareness Month 2024
It is September which means it is pain awareness month 2024, and as I live with chronic pain it is only fitting for me to talk about. I am not alone in living with pain, and raising awareness of how…
Myths and misconceptions about chronic illness
There are many myths and misconceptions about chronic illness, and they can really affect those of us who have them. Family, friends, and even medical professionals can treat us differently because of the things they assume. We have even experienced…
Disability Pride Month 2024
It is Disability Pride Month 2024 a time to celebrate, mourn, educate and get angry about the injustices we face every day. I think we can all agree that attitudes towards disabled people have to change, and that we are…
World Continence Week
This World Continence Week let’s talk instead of being shy and be open about my journey hopefully it will help you. I was in my early twenties when I first became sick, and at first it just affected my left…
Migraine and headache awareness month
It is Migraine and headache awareness month and I have a headache most days and regular migraines so let’s get into it. I have spoken a lot about how important awareness days are, and I always keep my eyes on…
The importance of symptom tracking
Today I thought we would talk about the importance of symptom tracking and how it can help you manage your chronic illnesses. I never used to track my symptoms, and I mean for decades, I would just notice something new…
EDS, ME, and Mental health awareness month
It is currently EDS, ME, and Mental health awareness month, and as I have all of these illnesses, lets shed some light on them. Chronic illnesses are never easy, they rarely make sense to doctors and people tend to spend…
