Living with chronic pain – pain awareness month 2022
Living with chronic pain is something I’ve spoken about a lot here on the blog over the years, and it is pain awareness month so let’s get into it. Everyone has at some point felt pain, whether it is from doing too much at the gym, a broken arm or a sting from a bee. It is a warning that an injury has occurred and once that is healed there is no pain anymore. Long term pain however is far harder to understand and that is why most people cannot imagine what it is like to live with pain all the time. Living with chronic pain Chronic pain is: Chronic…
Hope for accessibility
Many of us face a world seemingly built against us and wonder if things will ever get better, but a recent opportunity gave me hope for accessibility, so I wanted to share. I recently went for a day out to a local stately home run by the national trust, and I vlogged my experience on my YouTube channel and wrote a post about how accessible it was. I want to start doing this once a month to try and help us to find more places to go out for the day with a little more information. I emailed the post and video to the generic email on the website honestly…
How accessible is Shugborough Estate
Last week me and my husband went to Shugborough estate in Staffordshire, it was a lovely day and we both really enjoyed it. But let’s talk about how accessible is Shugborough estate. I’m trying to get out of the house more, there are so many stately homes and museums around us that I thought it would be fun to go to one a month. I will be vlogging these days out for my YouTube channel and talking about the accessibility here on the blog. Of course, when you are going to old listen buildings you have to have an open mind, but still, it’s good to know for others planning…
I had a barium swallow
This week I had a barium swallow at the hospital, I was really nervous before it so I thought I’d share my experience. So, over the last couple of months, I have been struggling with problems with my throat, in the past when I said this the GP would refer me to speech and language. This was because I have neurological issues that have not been investigated and were why at first, they thought I had multiple sclerosis. Sometimes my mouth and throat work out of synch meaning that my swallowing is affected and leads to choking among other symptoms. However, this time my throat has an area that has…
Low energy means low motivation
Does anyone else find that low energy means low motivation? When my energy levels are low I just want to curl up and do nothing. Usually I am very motivated, I am good at setting myself goals, breaking it down into managable steps and reaching the target. But I have recently found myself struggling with this, and I have come to notice that those days are usually when my energy is low. I talk a lot here on the blog about my struggles with Myalgic Encephalomyelitis, otherwise known as Chronic Fatigue Syndrome. It is the reason I cannot work, why I cannot walk far, and why I need to rest…
How my illnesses affect my life
This month is Disability Pride Month, so I thought I would shine a light on how my illnesses affect my life. Ehlers Danlos Syndrome This is a connective tissue disorder that affects how stable my joints are, for me personally this illness has affected me the worst though I was only recently diagnosed. This illness was something I was born with and is why I spent my childhood in pain being told it was just growing pains. In reality, the constant walking incorrectly, and stressing my joints is why they think I got fibromyalgia. Fibromyalgia This gives me a low pain that is always there, fatigue, and strange sensations and…
My Illnesses really slow me down
There are times when my illnesses really slow me down and when I say it is frustrating that is a HUGE understatement! So, let’s have a chat about it. I have a YouTube channel and on it I do videos about witchcraft on a Monday and vintage fashion on a Friday with occasional chronic illness/disability videos. I’m so proud of my content and I put in so much work, but I don’t grow as fast as I would like. It’s taken me 6years to get over 1000 subscribers and sometimes I feel a little demoralised by that. However, I’m so proud of my content and I work so hard, so…
Building a mental health routine
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Frustrated with illness and GPs
Do you ever feel completely frustrated with illness and GPs and the ways that health professionals and government agencies react to it? If so, this is the blog post for you! I am diagnosed with a few overlapping illnesses that seem to cluster together like a group of gossiping old women! Ehlers Danlos Syndrome, Fibromyalgia and Chronic Fatigue or ME as it is known by doctors. Together these old women leave me mostly housebound, exhausted, unable to clean my home or do my hobbies as much as I would like. They took away my ability to work in my twenties and stole my chance to be a nurse I’d trained…
Recovering from a holiday
Recovering from a holiday can be hard, I know for me it is the thing that I dread the most and why I rarely go. But we all need a break now and then, so let’s talk about it. I just got home from 4 days in Scotland, we went for our best friend’s wedding, and it was amazing! But for me, my husband, and our friend Amanda, we needed to be careful because we all have chronic illnesses. So, we drove up on the Friday, and instead of sightseeing, we spent Saturday in bed resting and recovering from the drive. Sunday was the wedding, and we ate, danced, and…
