My illnesses awareness month
There are a lot of things I am not good at, including riding a bike, but the main one is remembering dates, birthdays etc. I really suck at it, still it was impossible to escape my notice this month that it is all my illnesses awareness month! Ok not ALL of my illnesses, but three of them the ones I think of as being my main three. Ehlers Danlos Syndrome, Myalgic Encephalomyelitis (ME) and Fibromyalgia have all affected my life in huge ways that I am even not just starting to understand. I felt very overwhelmed about all three happening together, so I thought I would write one post and…
Flares and Animal Crossing
Flares and Animal Crossing are things I never thought would go together, but over the last week they have really gone together for me! So a few weeks ago I treated myself to a Nintendo Switch and the game Animal Crossing (not sponsored I wish!) I love watching people playing Sims 4 and at the moment a lot of the players are having a go at the new Animal Crossing game. It looked so cute and was so relaxing to watch so I wanted to have a go and let me just tell you…it really is! See this last week I had a flare, my pain raised, my headaches returned,…
Lockdown Silver Linings Tag
Gratitude has always been incredibly important in my life, but since taking time every day to give thanks its so much easier to count my blessings. This practice has helped my mental health so much and taken away that comparison we can all easily fall into on social media. So I was really excited when Finn the Infinncible tagged me in the Lockdown Silver Linings Tag. This tag is about listing five things that you are thankful for in lockdown so lets have a look at mine! Lockdown Silver Linings Tag My Husband – I am incredibly lucky to be able to say not much has changed for me personally.…
Tips for insomnia
You know right now so many of us are struggling, able bodied or with chronic illness we are all in the same situation. I have seen a lot of people talking about struggling right now so I thought I would share some tips for insomnia that work for me. I have had insomnia my whole life, I remember as a child being put to bed and then reading, or just laying there. When my parents came to bed I would pretend to be asleep but most nights were spent alone in bed waiting to fall asleep and wishing the morning would come. Now with this pandemic that is happening in…
Mental health during the pandemic
I wasn’t sure what to talk about this week, I am not leaving my house at all and I am kind of addicted to Disney+ at the moment. However, I am more and more seeing people posting on social media that they are struggling with isolation and being at home. So I knew I had to talk about mental health during the pandemic. Your mental health is something that should always be a priority, but often when you are working and looking after children etc it can be put aside. It is sometimes only when we are forced to stop that we realise something is wrong. So here are some…
Calming Blankets Review + discount code
I was so lucky recently Calming Blankets got in touch with me to ask me to do a review of one of their weighted blankets. I have long wanted to be able to afford one, so I am so happy to be doing a Calming Blankets review! There has been a ton of research done into the benefits of using a weighted blanket. Personally I had long heard about how it was good for people on the autistic spectrum and with anxiety. However, I have recently been hearing about how weighted blankets can help chronic pain. I have several chronic illnesses that cause me to have widespread pain, fatigue, anxiety…
The migraines are back
So for a while now I have not been struggling with my chronic migraines, but now the migraines are back! Its strange because I had a doctor I saw for them and I am on medication to take when I have them. But they have not been around so I have to get used to them again. I had two lots of botox into the base of my skull for them a couple of years ago and they really helped. Along with that I had a shield from the dentist to stop me grinding my teeth and I started drinking lots more water every day. These things together meant that…
Muggle sick with chronic illness
A couple of days ago I went on a double date with hubby and some friends, the next morning I woke up with a cold. This time of year when leaving the house is something that you can rarely do, catching a cold is really easy to do! My husband who goes to work is fine, because he has a stronger immune system, I on the other hand am muggle sick with chronic illnesses! When normal people sick comes it makes your other illnesses and pain flare, you feel your own illnesses as well as the miserable feeling of having a cold. It is easy to feel like you should…
Chronic Illness Rollercoaster
Do you ever feel like you are on a chronic illness rollercoaster? Where you never know where you will be or how you will feel from one hour to the next? Now I am not talking about highs and lows that can come with some mental health diagnoses, I am talking about pain and fatigue. Recently I have been finding it hard to plan my days because I can wake up feeling good and plan out my rests and my days activities. Then not even an hour later I feel like I just ran a marathon and my head is pounding. It feels like a rollercoaster, when you are terrified…
Push for what’s right
Last week was not the easiest, I had to go to court to fight to get my disability benefits back. It was so stressful, and caused a flare, but sometimes you have to push for what’s right. I was surprised at how friendly the people at court were, there was a judge, a doctor and a disability specialist. There was also a secretary who took us inside after explaining exactly what was going to happen. They asked us questions rather than letting us talk which was a lot easier. The worst part of the whole thing has been the flare of my illnesses it caused. The travel and the stress…
