Learning to rest
Knowing that my body is struggling, doesn’t mean that I find it easy to slow down, no I’m still learning to rest!! I spoke last week about how my health is doing right now, and no it isn’t good to be honest it’s a struggle. Dealing with myalgic encephalomyelitis as well as long covid is like trying to stay awake for a week while living a normal life! As well as trying to keep my YouTube channel going, I’m a disabled carer for my mother and I have hobbies. I’ve spoken before how important hobbies are, but it’s not easy to do them when your body just wants to nap!…
Starting off the year with pain
Hello 2024, except I’m starting off the year with pain and it is not something I can just push through so let’s chat about meeting expectations. Life with chronic illness is never easy, I have spoken a lot about how I cope with it here on the blog, and generally I cope well. I am on good pain medications that usually manage my pain and have for years, as well as using things like CBD, exercise, and meditation so far it had worked. However, at the start of the year I am finding that to no longer be true and honestly, I am unsure of how to move forward. I…
My goals for 2024
It is a new year, and I thought we would start off the year talking about my goals for 2024, and no I don’t mean resolutions! Now, as I have discussed in a previous YouTube Video, resolutions don’t work, and as I read previous posts about this I know I goals have not changed too much. However, I do want to share my plans an goals for the year because I want to manifest my best year! My Goals for 2024 Personal goals: I think we all have things we want to do in our lives and here are mine and how I plan to do them My Blog and…
Disability representation on Doctor Who
We all want to see ourselves represented on TV and in movies, but often we are disappointed, until we saw the disability representation on Doctor Who let’s chat about it. I have been a fan of Doctor Who since I was a child, my first Doctor was played by Peter Davison, and though I didn’t watch all the seasons that changed when it was restarted. The new version of Doctor Who is amazing and includes some of my favourite characters, and so I want to say I was already a fan. However, the show has not always represented the disabled community well, they have often had them played by…
Winter Resources and Support
The weather is especially cold this year, and I know a lot of people struggle during the holidays, so I have put together some winter resources and support. Most nights, as I snuggle under the covers, I am thankful, I think about my husband, and our warm home where I am not afraid, and I appreciate it. I have not always been in such a lucky position at this time of year, and many people after decades of austerity are not now. I wish our government, and people in general, were kinder and that society was set up for everyone to flourish and live their best, healthiest lives. But I…
Mindfully coping with stress
Today I want to talk about mindfully coping with stress, something that I fight most days as I have an anxiety disorder. It might help you to do these things as well. Stress is a part of life, certain things make it worse, but we have all dealt with stress at one time or another in our lives. I grew up not knowing that I had an anxiety disorder, and honestly wondered how people coped in life if everyone was as scared as I was every day. Often I would be sick before school, and hated having to go anywhere alone as I was afraid I would get lost. As…
Things I wish people wouldn’t say about my chronic illnesses
In this weeks post, I thought I would talk about things I wish people wouldn’t say about my chronic illnesses. This is an important one for people in the street!! Most people who know me well, don’t chat much about my chronic illnesses because honestly it’s not the most exciting or interesting thing about me. Thankfully it can blend into the background and I can just be me. However, when meeting new people or being out of the house, I often find myself on edge and anxious about the people who will see me. Will they make assumptions about me based on how I am walking, if I am using…
Good and bad days with chronic illness
The difference between good and bad days with chronic illness can be almost unrecognisable, and yet most people only see us on good days. So lets chat about it. I think most people know someone with chronic illnesses, whether we realise it or not, it could be a family member or that quiet woman at work. Many people who struggle with them try their best to not be a burden, myself included. Being a carer for my disabled mom, I rarely ask for help unless it is from my husband who is wonderful at looking after us both. And because family do not see me on a bad day, they…
Prioritise self care days
As the holiday season approaches, I thought we would talk about why it’s important to prioritise self care days. This should be all year, but I know what we are all like! Recently my life has changed, the amazing woman who redesigned my blog, YouTube and social media has become one of my closest friends. She introduced me to roleplaying and table top games, and I started going to a club for it once a week. However, in order to be able to do this, I have had to start prioritising self-care or it would have resulted in my illnesses getting worse. I already look after my mom and run…
Key Tips For Helping Someone With A Chronic Medical Condition
Living with a chronic medical condition can make many aspects of life harder than they need to be. People with chronic conditions will need more support than the average person, but how do you help them? It can often feel like an impossible task as you know the person is struggling or in pain, yet you also know that their problem will never go away. You start to feel helpless of assume that there’s nothing you can do to help. Some people go the other way and become overly helpful. That may sound weird, but anyone with a chronic condition reading this will know what it means. Yes, people want…
