New Year, New Flare!
Yes, new year, new flare! We have all been there, you make plans and then your body decides to start giving you magnified versions of symptoms you already have or completely new ones! It’s a very frustrating start to the…
Trying MCT oil for my Brain Fog
Since contracting Long Covid on top of Myalgic Encephalomyelitis I have been really struggling with feeling groggy and sleepy all the time. So, as a last resort I spoke to my local health food shop, and they suggested trying MCT…
Invisible Disabilities week 2024
It is Invisible Disabilities week 2024, and once again I feel the need to talk about how we shouldn’t judge a book by it’s cover. Too often medical professionals and the public see us on social media living our lives…
The frustrations of being a wheelchair user
I will be honest, the frustrations of being a wheelchair user are many and though some are individual, many are shared. So, I thought today I would spend a little time explaining about the different reasons someone might use a…
Reading every day with chronic illness
I love to read, it has been something I have loved since a child, curled up with my favourite teddy and a good book I would be happy for hours. But reading every day with chronic illness is not easy,…
My pillow was stopping me sleeping
In today’s post I want to talk about how my pillow was stopping me sleeping and how I think I have finally found the answer! Ever since I first got sick, I have been struggling with neck and shoulder pain…
Mental health and chronic fatigue
It is currently both myalgic encephalomyelitis and mental health awareness month, so let’s have a chat about mental health and chronic fatigue. I have spoken in the past about the importance of awareness months, as they help us to spread…
Day in my life as a disabled carer
This week I thought I’d share a day in my life as a disabled carer, I hope this helps everyone see that disabled doesn’t mean lazy! I am disabled I have several chronic illnesses; I became sick in my early…
Frustrated with fatigue
I have not done a post like this for a while I don’t think, most of the time I try to use my life as a teaching moment here…but I’m just frustrated with fatigue! Looking back, I think I always…
Learning to rest
Knowing that my body is struggling, doesn’t mean that I find it easy to slow down, no I’m still learning to rest!! I spoke last week about how my health is doing right now, and no it isn’t good to…
