Pain awareness month
Pain awareness month is an important time of the year for advocates, we can take the opportunity to raise awareness for the fact that chronic pain is not like acute pain. There are so many different definitions, and statistics and…
Working through frustration
Working through frustration has become something I am used to, something I battle with every day. Chronic fatigue holds me back from so much, recording my YouTube videos, even writing this blog so I thought we should chat about it.…
Taking some me time
I think we all live with guilt when we take a day for ourselves, it’s ingrained in our society to always be working and grafting even if we are sick. But taking some me time is so important for our…
How my mobility aids help my pain
Many people in this world use mobility aids, but today I want to talk about how my mobility aids help my pain. Now if you don’t use them this might seem strange, but bear with me and everything will become…
One of those days…
Yes, today is one of those days, you know when everything hurts and you feel like you could nap for about a year quite happily. So instead of heading to bed, I thought we would talk about it. Most of…
ME/CFS frustrations
It is ME awareness day and I am a sufferer of this illness so I wanted to make a post about it and why we need more awareness and more funding. There is so little known about this illness even…
Body positivity when disabled
Body positivity when disabled is not easy, everything in media and in society in general is negative about disability, most of the time we are kind of forgotten. Otherwise we can be made to feel guilty or judged by how…
Health Update
I always find these posts important to write but difficult to write, I am not sure why but here is a health update. I will also be chatting a little about how being a carer has affected me. I have…
Rest is Self Care
I think so many of us, disabled or not, think that rest is wasting time or not being productive enough. I felt the same for a long time, but I have found rethinking it as rest is self care really…
When pacing goes wrong
I think we have all had times when pacing goes wrong and end up doing so much more than you meant. It is part of living with chronic illnesses that cause fatigue, and so is the guilt! So I thought…
