Staying Cool with Chronic Illness
Staying cool with chronic illness is never easy, many of us struggle to regulate our temperatures which can lead to overheating. Added to that is the fact that many medications can affect how our bodies react to heat and direct…
If I woke up well tomorrow
This week I thought I would do something different and talk about what I’d do if I woke up well tomorrow… I try not to think about this, to ponder on how I would change my life if I was…
Disability Pride Month 2024
It is Disability Pride Month 2024 a time to celebrate, mourn, educate and get angry about the injustices we face every day. I think we can all agree that attitudes towards disabled people have to change, and that we are…
World Continence Week
This World Continence Week let’s talk instead of being shy and be open about my journey hopefully it will help you. I was in my early twenties when I first became sick, and at first it just affected my left…
Migraine and headache awareness month
It is Migraine and headache awareness month and I have a headache most days and regular migraines so let’s get into it. I have spoken a lot about how important awareness days are, and I always keep my eyes on…
My pillow was stopping me sleeping
In today’s post I want to talk about how my pillow was stopping me sleeping and how I think I have finally found the answer! Ever since I first got sick, I have been struggling with neck and shoulder pain…
The importance of symptom tracking
Today I thought we would talk about the importance of symptom tracking and how it can help you manage your chronic illnesses. I never used to track my symptoms, and I mean for decades, I would just notice something new…
EDS, ME, and Mental health awareness month
It is currently EDS, ME, and Mental health awareness month, and as I have all of these illnesses, lets shed some light on them. Chronic illnesses are never easy, they rarely make sense to doctors and people tend to spend…
Mental health and chronic fatigue
It is currently both myalgic encephalomyelitis and mental health awareness month, so let’s have a chat about mental health and chronic fatigue. I have spoken in the past about the importance of awareness months, as they help us to spread…
Disability is not a choice
Disability is not a choice; our government seems to think otherwise as if we didn’t just come through a deathly worldwide virus! Grab your tea let’s unpack this! Rishi Sunak, a multi-millionaire, stood at a podium and declared an end…
