Invisible Disabilities week 2024
It is Invisible Disabilities week 2024, and once again I feel the need to talk about how we shouldn’t judge a book by it’s cover. Too often medical professionals and the public see us on social media living our lives…
The frustrations of being a wheelchair user
I will be honest, the frustrations of being a wheelchair user are many and though some are individual, many are shared. So, I thought today I would spend a little time explaining about the different reasons someone might use a…
Pain Awareness Month 2024
It is September which means it is pain awareness month 2024, and as I live with chronic pain it is only fitting for me to talk about. I am not alone in living with pain, and raising awareness of how…
My pillow was stopping me sleeping
In today’s post I want to talk about how my pillow was stopping me sleeping and how I think I have finally found the answer! Ever since I first got sick, I have been struggling with neck and shoulder pain…
Starting off the year with pain
Hello 2024, except I’m starting off the year with pain and it is not something I can just push through so let’s chat about meeting expectations. Life with chronic illness is never easy, I have spoken a lot about how…
Good and bad days with chronic illness
The difference between good and bad days with chronic illness can be almost unrecognisable, and yet most people only see us on good days. So lets chat about it. I think most people know someone with chronic illnesses, whether we…
Items that help me live with chronic illness
Shockingly I have never spoken about the items that help me live with chronic illness, but it’s important to share what gets us through the day. So, my life is lived I refuse to just survive or push myself through…
Pain Awareness month 2023
It is Pain Awareness month 2023 and as I have lived with chronic pain for over twenty years, I thought we would have a chat about it. During Pain Awareness Month 2023, I am reminded that many people get confused…
All my illnesses awareness month
May is a big month in the raising awareness stakes and for me it is all my illnesses awareness month! So, I thought I would do one big post with lots of information! Lets do this: My illnesses, Ehlers Danlos…
Find space to breathe
I have been making changes in my life, trying to find space to breathe and feel happier and healthier its a process!! Change is never easy, years ago my routines were healthy and I felt better in myself I did…
